Focus on Sickle Cell Foundation (FoSCel) has called for increased awareness and proactive care for people living with sickle cell disease during its Sickle Cell Fun Fair at Achimota Mall on Saturday, February 14.
Speaking at the event, the Founder and Executive Director of FoSCel, Amos Andoh, emphasised the importance of engaging young people in educational activities about the condition, noting that entertainment-based approaches can attract more attention than traditional awareness campaigns.
“Our main focus is to create awareness on sickle cell in an entertaining way. We believe that attracts the youth more than anything,” Mr Andoh said.
He highlighted the severity of sickle cell disease, pointing out that many children are born with the condition due to lack of awareness.
Research indicates that approximately 18,000 babies are born annually with sickle cell disease in Ghana.
“We want to change the narrative from unknown to known so that the next generation understands sickle cell condition better and can make informed choices before bringing forth children living with the condition,” he explained.
Mr Andoh also addressed caregivers and parents of children living with sickle cell disease, emphasising the importance of daily care, proper medication, and emotional support.
“The stress alone with sickle cell warriors can trigger a crisis. Caregivers should ensure that children take their medication on time. Even home remedies such as drinking plenty of water can help maintain smooth blood circulation,” he advised.
He highlighted the role of medications such as hydroxyurea and folic acid, which should be taken consistently to manage the condition.
Additionally, he encouraged families to maintain a stress-free and healthy lifestyle to prevent complications associated with sickle cell crises.
The Sickle Cell Fun Fair, organised in partnership with the National Health Insurance Authority, the Ministry of Health, Promasidor Ghana, and Achimota Mall, sought to combine education, entertainment, and community engagement to improve public understanding of the condition.
“We are motivating caregivers and people living with sickle cell disease to take care of themselves and work with us to reduce the occurrence of crises. Adequate hydration, proper medication, and stress management are crucial,” Mr Andoh added.
The event featured interactive activities, music, and educational sessions designed to inform both the youth and the broader public about the challenges of living with sickle cell disease and the importance of prevention, early detection, and consistent care.
He expressed commitment to raising awareness about sickle cell disease, supporting caregivers, and improving the quality of life for people living with the condition across Ghana.
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Source: www.myjoyonline.com