The Anidaso Parkinson’s Disease Foundation has issued a strong call against stigma and misinformation surrounding Parkinson’s disease following the public disclosure by IMANI Centre for Policy and Education founder, Mr Franklin Cudjoe, that he has been living with the condition for eight years.
In an official statement, the foundation welcomed Mr Cudjoe’s decision to speak openly about his diagnosis, describing it as a significant step towards deepening public understanding of the neurological condition in Ghana.
“We commend his courage and openness in sharing his personal health journey. His voice adds to the growing chorus of Ghanaians and Africans bringing this neurological condition into the light of public discourse,” the foundation said.
While acknowledging the widespread expressions of support and goodwill that followed the disclosure, the foundation said it was concerned about reactions that revealed deep-seated misconceptions and stigma associated with Parkinson’s disease.
“While many have responded with an outpouring of hope, prayers, and support, which is deeply encouraging, we are also aware that some reactions have reflected misunderstanding and stigma,” the statement noted.
The foundation stressed that Parkinson’s disease should not be associated with diminished ability, intelligence or personal worth, and urged the public to move away from harmful stereotypes.
“Parkinson’s disease is a complex medical condition, not a mark of weakness or a diminishing of one’s intellect, capabilities, or humanity,” it stated.
It added that individuals living with the condition can continue to live meaningful, productive and influential lives, citing Mr Cudjoe as an example.
“Individuals living with Parkinson’s disease, like Mr. Cudjoe, continue to lead impactful, productive, and inspiring lives,” the foundation said.
The Anidaso Foundation said stigma remains one of the most painful challenges faced by people living with Parkinson’s disease, often leading to isolation and silence rather than early diagnosis and support.
“We categorically denounce any stigmatizing language or perception associated with Parkinson’s disease or any other health condition,” the statement said.
Reaffirming its commitment to advocacy and support, the foundation said it stood in solidarity with Mr Cudjoe and all others affected by the condition across the country.
“We stand firmly with Mr. Franklin Cudjoe and every individual and family navigating life with Parkinson’s disease in Ghana. You are not alone,” it said.
The foundation emphasised that a Parkinson’s diagnosis, while life changing, does not mark the end of one’s contribution to society.
“‘Anidaso’ means Hope. A diagnosis of Parkinson’s is a life-changing event, but it is not the end of one’s story,” the statement added.
Mr Cudjoe earlier disclosed in a Facebook post that he has lived with Parkinson’s disease for eight years, describing it as manageable despite having no cure and expressing his determination to raise awareness and support Parkinson’s advocacy efforts in Ghana.
The foundation expressed hope that the growing public conversation sparked by the disclosure would encourage empathy, reduce stigma and strengthen support systems for people living with Parkinson’s disease nationwide.
Source:
www.graphic.com.gh
